Today is a big milestone as we celebrate the launch of Stroke Foundation Young Stroke Project website!
Stroke Foundation is partnering with the stroke community to deliver an exciting new project to meet the information needs of young stroke survivors.
Funded by National Disability Insurance Agency (NDIA), the three-year project will help those impacted by stroke aged 18-65 navigate to find their new ‘normal’.
The new project website will be an important place for stroke survivors, carers, family, friends, health professionals, researchers and other service providers to participate, keep up to date with project progress and provide valuable feedback.
Stroke Foundation Young Stroke Project will be designed and delivered using a codesign approach, alongside the young stroke survivor community, their carers, family, researchers and health professionals.
Its focus will be on areas that matter to the young survivor community:
- physical activity and
Ensuring the right information is available at the right time, when and how it is needed is essential to finding the new ‘normal’.
Adrian O’Malley, young stroke survivor and EnableMe member tells us:
“Information is incredibly important. You need good information to make informed decisions. Access to good information makes a difference to your outcomes throughout your life.”
Stroke Foundation Young Stroke Project will build on existing resources on EnableMe online community as well as focus on StrokeLine, telephone advice service.
The project will deliver new guides, planning tools, videos, podcasts and learning modules.
Engagement with diverse groups within the stroke community will be built into the project.
We recently met with some of the young stroke community to share the news about the project. Sue Bowden, young stroke survivor and EnableMe member said:
“Stroke Foundation Young Stroke Project is an exciting way of working together. It will be great to see the personal experience of young survivors combined with current research to bring young stroke information into the 21st Century”.
Want to find out more?
Beverly, Simone and Saran are the project coordinators for Stroke Foundation Young Stroke Project and bring together expertise in digital services, healthcare and lived experience.
We look forward to keeping you up to date as the project progresses and provide opportunities to be involved. You can register your interest in the project by clicking the button below or for more information email firstname.lastname@example.org