To complement recent Discovery Sessions, the Young Stroke Project also conducted a survey to reach more people online and to gather additional insight. The aim of the online survey was to further explore:
- How can we better connect support crew with young stroke resources, services and peer support?
- How can we ensure support crew can easily access what they need at all stages in their journey?
Summary of surveys
- We conducted 3 online surveys with Young Stroke Survivors, Support Crew and Health Professionals.
Some of the findings are outlined below.
Young Stroke Survivors
The majority of young stroke survivors (81%) said they found information online and 59% of young stroke survivors said they received information from Health professions such as GP, OT, speech pathologist etc. This was followed by information from other young stroke survivors (22%), printed material (12%) and then family, friends or carer (7%).
A large portion of young stroke survivors (59%%) said they preferred to access information by online websites, followed by 22% of young stroke survivors preferring printed material. This was followed by 19% preferring to access information by other means such as face-to-face, video chats, in hospital and social media.
The majority of support crew (86%) said they preferred to access information by online websites. This was followed by 7% of support crew who preferred printed material and 7% who preferred other.
Support crew preferred to receive information as written (72%) or via social media (50%). Some preferred to receive information by audio (7%).
Health Professionals were more evenly divided in their preferences for providing information. 60% preferred printed hard copy material, 60% preferred online (website or app) and 60% preferred verbal. 40% of Health Professionals preferred to provide information verbally. 80% of Health Professionals had other preferences including providing information that best suited the patient or providing information in the language of the patient.