CategoryProject updates

Get the latest on the Stroke Foundation Young Stroke Project.

Exciting news! Young Stroke Project partners with genyus network

We are thrilled to announce that Stroke Foundation Young Stroke Project have partnered with genyus network to conduct a series of Roundtable workshops around our first topic of Recovery. The genyus Roundtables will be hosted by Caleb Rixon, founder of genyus network and a young stroke survivor. Caleb Rixon, founder of genyus network The first five genyus Roundtables in September are already fully...

Paul Burns, young stroke survivor, shares his honest perspective of recovery and what the word means to him

“This focus with “Recovery” was doing me wrong, and my post stroke “Progress” wasn’t something I felt overly proud of. I had about as much chance of going back to “pre injury me” as we do of going back to “pre-Covid normal”. I am different. Like anyone is after experiencing a life changing event.” Recovery is the first topic Stroke Foundation Young Stroke Project will cover. What does...

Meet Saran – She’s a young stroke survivor who’s joined our team

We are very excited to announce the appointment of Saran Chamberlain to Project Coordinator. Saran brings both a depth of professional and lived experience to the project team. Her role has a focus on engaging people, organisations and networks with the project. A very warm welcome and congratulations to Saran! Saran joins Project Coordinators Beverly Ridley and Simone Russell. Saran Chamberlain...

Our first topic will be Recovery – See how our survey went

Recently we conducted a survey about topics the project should cover first. Over 500 people responded which is an amazing effort. So a big thank you to everyone that took the time to complete the survey! The results are in …. and the first topic will be Recovery. This will include, but not be limited to, physical activity, cognitive retraining, self-care, self-compassion, mindset...

We talked Young Stroke with the State Cabinet Ministers in Perth and Premier of WA

On Saturday 25 July 2020, Beth and I were invited to the community meeting with the State Cabinet Ministers in Perth and the Honourable Mark McGowan Premier of WA, Roger Cook MLA and Lisa O’Malley MLA.As a student Nurse and Young Stroke Survivor Beth got to experience firsthand why her voice and lived experience matters, the importance of having a voice, the role nurses have in the wider...

Meet the Lived Experience Working Group

We are very excited to announce the Lived Experience Working Group for Stroke Foundation Young Stroke Project. Adrian O’Malley, Lived Experience Working Group member and stroke survivor says: “While my stroke has left me with vision impairment and limited function in my right hand, I was lucky to have a strong support network around me. I want to help others that have not had the outcomes or...

Stroke Foundation Young Stroke Project survey is now open!

As part of the younger stroke community, we want to hear from you! Tell us what information is important to you and the topics the project should cover first. Consider what was done well and where improvement is needed. As well as asking about the topics the project should cover, there are questions to help us paint a picture about who the information will be for. Take part if you: had your...

Stroke Foundation Young Stroke Project in the news

It’s awesome to see young stroke getting the attention it deserves! Most people are unaware that stroke can happen at any age. Information for younger survivors is lacking and this is exactly what Stroke Foundation Young Stroke Project intends to address. Thank you Fiona for helping spread the message by sharing your experience. Your story is one echoed by many younger survivors. It’s...

We are hiring

We are looking for a stroke survivor to join Stroke Foundation Young Stroke Project team. We have a fixed-term, part-time position available for a Project Coordinator. This role will be part of the team delivering Stroke Foundation Young Stroke Project, with a focus on engaging people, organisations and networks with the project. We offer flexible working arrangements, and will accept...

Our website is live!

Today is a big milestone as we celebrate the launch of our Stroke Foundation Young Stroke Project website!