Connecting with peers

Key points

  • Life after stroke can be isolating, but it doesn’t have to be. It is important to remember that you are not alone. There are many others who have gone through stroke. Connecting with people who have “walked in your footsteps” is powerful.
  • It is being amongst peers, not having to explain yourself. They just get it.
  • It is being able to ask honest questions and getting honest answers as they have gone through it before.

You don’t have to explain your deficits … they just get it

You are not alone. You are not the only person to have gone through stroke. Even though some days you feel so alone. So isolated. Watch young stroke survivors talk about how connecting with other young stroke survivors has been invaluable to them.

The peer support of the people who have been there, done it, share the same values. They’ve been the biggest value to me. And continue to be.

Paul, Young Stroke Survivor

Laine’s story

Laine was 45 years old when she had her stroke. Laine recounts how very early on in her stroke recovery she met another young stroke survivor. “Luckily there was also another stroke patient there. And she had the experience of being two years down the track. So again that was amazing. That was really lucky and I could ask her questions about – Is this normal? Did you feel like this? And it was really quite a safe space for me to ask those questions that I wouldn’t have been able to have asked of doctors and nurses, cos of lived experience.”

I want to connect. Where do I start?

We all need to meet someone who gets it, to learn the ropes together and not do it alone. Your journey starts right here.

Caleb, Young Stroke Survivor, genyus network
  • Genyus network – a safe place where every person touched by trauma has a voice and can connect with someone who understands.
  • Find a support group across Australia – There are stroke support groups across Australia, powered by stroke survivors, families and carers who want to see the benefits of peer support made available to as many people as possible.

Where to get help