Sue suffered a stroke in 1993 shortly after she experienced pre-eclampsia which resulted in the stillbirth of her first child. After her stroke, the 22 year old was fully aware of who she was and who the people were around her, but she had to communicate ‘yes’ and ‘no’ by blinking. Sue was unable to walk, talk, eat independently or even smile. It was an incredibly difficult time.
Sue’s husband was not given any information about stroke, rehabilitation or how to help his wife and was not provided with any support. There was nothing available to meet their needs.
It took Sue many years to find support relevant to her experience, and has worked hard at ongoing recovery, going on to have three more children.
Sue is interested in the latest stroke research and how people with lived experience of stroke are able to access that research and be involved in future stroke treatment and recovery. She also wants to help devise information and resources that would have been beneficial to her in her recovery. She said young stroke survivors are allowed to feel they are able to maximise their recovery and live their lives.