Nichola brings the family perspective to the Lived Experience Working Group after her daughter Beth had a stroke in 2019 at the age of 19. Nichola has also been a nurse for 32 years. Although Nichola knew plenty about stroke, it is not something she thought would impact her teenage daughter.
From the moment Beth was in hospital having scans and tests, Nichola found she had to advocate for her daughter. Although Beth’s medical treatment was excellent. Nichola felt she had to actively chase information, support and advise her. It was exhausting and worrying and lonely at times. Nichola had to take on the role of nurse, carer, counsellor and case manager more than she could be mum. Nichola had the additional challenges of having no family support, looking after two school-aged children and work commitments.
Nichola believes her perspective and knowledge will add a different element to the working group because stroke not only affects the individual, it affects the whole family. She is grateful for the experienced to participate, contribute and give back to the stroke community to help working age people with stroke in the future.