Q. What is Stroke Foundation Young Stroke Project?

A. Stroke Foundation Young Stroke Project partners with those aged 18 to 65 living with stroke. It will work with survivors, their partners and families to understand specific needs and help empower those impacted to build their ‘new normal’. 

Funded by National Disability Insurance Agency (NDIA), Stroke Foundation Young Stroke Project will run from early 2020 until the end of 2022. 

Register your interest to find out more and be part of Stroke Foundation Young Stroke Project. 

Q. Why is Stroke Foundation Young Stroke Project important? 

A. It is estimated there are more than 142,000 younger Australians (aged 18-65) living with the impact of stroke. International evidence indicates these numbers are set to increase. 

Younger survivors report needing help returning to study, work, building relationships and parenting. 

Currently, there are zero resources specifically targeted to this group and its needs. Survivors and their families are being left to build their new ‘normal’ alone. 

Q. What will the project deliver?  

A. Stroke Foundation Young Stroke project will work with younger survivors, their partners, families and carers to consider their specific needs and to deliver content that empowers them to build their ‘new normal’ after stroke. 

Topics might include: 

  • Study, volunteering and work.  
  • Friends, relationships, parenting, family.  
  • Recreation, activity, self-care, self-compassion, recovery.  
  • Grief, loss, trauma, discrimination, acceptance, renewal and growth.  
  • Accessing, navigating and influencing the service system.  

We’ll work to ensure information is accessible when where and how it is needed. Resources will include guides, checklists, planners, videos, podcasts and learning modules for survivors, their family, friends and employers. 

Q. Who can be involved in Stroke Foundation Young Stroke Project? 

A. Young survivors and their loved ones, community organisations, health professionals and researchers are invited to be involved. For it to be successful we want to hear from a diverse range of voices. 

There is a focus on engaging with the Aboriginal and Torres Strait Islander community, as well as Lesbian, Gay, Bisexual, Transgender and Intersex (LGBTI+) communities. 

Q. How can I be involved with the project? 

A. Register your interest and we will be in touch with updates on the project and opportunities to be involved.   

It’s up to you how you may want to be involved. You might wish to simply utilise the resources as they develop, or you might like to help us create them. Opportunities to be involved include: 

  • Interviews. 
  • Surveys. 
  • Online workshops. 
  • User testing. 

Register your interest so we can stay in touch along the way. Opportunities to be involved will be promoted through this website, project emails and Stroke Foundation social media channels and stroke survivor online community EnableMe

Q. Is the information I provide to Stroke Foundation Young Stroke Project protected?  

A. The information people provide when they register will be managed according to Stroke Foundation privacy policy.  

Q. Is Stroke Foundation Young Stroke Project a research project? 

A. Stroke Foundation Young Stroke Project is not a research project. 

Its focus is information delivery. Everything we learn as part of the project will be used to deliver information for younger stroke survivors, their partners and families. 

Q. Where can I find out more about stroke? 

  • Contact Stroke Foundation StrokeLine 1800 787 653 our free and confidential helpline staffed by health professionals. StrokeLine provides information, advice and support to stroke survivors, carers, family, friends and health professionals. StrokeLine operates Monday-Friday 9am-5pm (EST). 
  • Visit Stroke Foundation website www.strokefoundation.org.au or Facebook page.
  • Visit EnableMe, Stroke Foundation’s online community for stroke survivors and their families. 

Q. Where can I connect with other stroke survivors and carers? 

A. You can find a range of online and in person stroke support options on EnableMe or call StrokeLine 1800 787 653 for details about the most appropriate support. 

Carer Gateway 1800 422 737 and Carers Australia also provide carer resources and support. 

Q. I am a health professional, where can I find out more about stroke? 

A. InformMe is a dedicated resource for health professionals working in stroke care, including those currently studying to improve the treatment of stroke care. InformMe was developed by Stroke Foundation to consolidate evidence-based resources and empower health professionals.