Help to find the new ‘normal’ – about Stroke Foundation Young Stroke Project

Stroke Foundation Young Stroke Project partners with those aged 18 to 65 living with stroke. It will work with survivors, their partners and families to understand specific needs and help empower those impacted to build their ‘new normal’.

What is Stroke Foundation Young Stroke Project?

Stroke Foundation has been funded by the National Disability Insurance Agency (NDIA) to deliver information for younger stroke survivors aged 18 to 65 years old, their partners, families, friends and employers. 

Starting in 2020, the project will run for three years. 

The project will connect with younger survivors, their partners and families to gain an understanding of their specific needs and provide tailored resources. Resources will be designed and delivered in ways tailored to their audience. Survivors and their family members will be empowered to build their ‘new normal’. People impacted with stroke from across the community will be invited to take part. It will involve a diversity of voices. 

This includes engaging with organisations representing diverse communities. Aboriginal and Torres Strait Islander survivors will be a focus, as will people from Lesbian, Gay, Bisexual, Transgender, Queer and Intersex (LGBTQI+) communities.

What information will the project deliver? 

Topics will reflect the needs of the community, what is important to younger people living with stroke including:

  • Study, volunteering and work. 
  • Friends, relationships, parenting, family. 
  • Recreation, activity, self-care, self-compassion, recovery. 
  • Grief, loss, trauma, discrimination, acceptance, renewal and growth. 
  • Accessing, navigating and influencing the service system. 

Supporting resources will include guides, checklists, planners, videos, podcasts and learning modules.

Information will be delivered how and when it is needed. It will be tailored to meet the needs of the community.

How will we work together? 

The stroke community is central to the project’s success. Stroke Foundation will partner with the community to draw on:

  • Lived experience – stroke survivors, partners, families, friends. 
  • Professional experience – health and community service professionals, researchers. 

Individuals can be involved in different ways along the journey.

It’s an opportunity to choose your own adventure – you tell us what you want to do, how much you want to be involved and for how long. 

Further information

  • For further information or to discuss the project you can contact Stroke Foundation Young Stroke Project Coordinators Beverly, Simone and Saran on youngstrokeproject@strokefoundation.org.au or phone (03) 9670 1000.
  • For more on stroke or to discuss your needs contact StrokeLine health professionals on 1800 787 653 (Monday-Friday 9am-5pm, AEST). 
  • Join in conversations with the stroke community, set recovery goals, explore resources such as My Stroke Journey or our podcast series on EnableMe.